Lewy Body Dementia Caregivers Share Their Personal Experiences

FatherDaughter8...As with most types of dementia, family members are the primary caregivers by default, at least at the beginning of the disease. They are usually the people who notice that something is not right with their spouse or parent. Again, like Alzheimer’s and most other types of dementia, care needs escalate with time. This ongoing care can be physically arduous and emotionally demanding. 

Jeanne Gibbs, whose husband had LBD, illustrates her husband’s state of mind with the scenario below, which she handled like a pro:

Sometimes (but certainly not always!) the cause confusion in dementia can be determined and dealt with.

I worked at home to support us. One day my husband, Coy, was waiting for a rain-delayed baseball playoff game, and he came into my office...

Read full article on HealthCentral about some of the challenges that lewy-body caregivers face:

Purchase Minding Our Elders: Caregivers Share Their Personal Stories – paperback or ebook

Ebook on sale this week for $2.99 in honor of "the longest day" and Alzheimer's Authors

An amazing book of stories that will touch your heart and encourage you, especially if you are a caregiver. Carol  Bradley Bursack also has an excellent website devoted to the elderly and their caregivers. - Carol Heilman


Why Whole Foods Lower Your Risk of Alzheimer's, Diabetes, and Heart Disease

Diet1Poor diet has become increasingly recognized as a precursor to poor health, including diabetes and brain diseases, and the health issues are often intertwined. For example, diabetes increases the risk of developing Alzheimer’s disease. In addition, the suggestions for maintaining heart health are very close to those given to maintain brain health. HealthCentral conducted an email interview with Dr. John Douillard, DC, CAP, to discuss the ways that diet may influence the risk for developing Alzheimer’s disease in particular, but related diseases, as well.

Read full article on HealthCentral about how your diet  - especially whole foods - can lower your risk of Alzheimer's, Diabetes, and Heart Disease

Support a caregiver or jump start discussion in support groups with real stories - for bulk orders of Minding Our Elders e-mail Carol


Memory Expert Separates Fact from Fiction about Preserving Brain Health

Exercise13Myths about brain health are as rampant as they are for any feared disease. Neuropsychologist Dr. Michelle Braun is a memory expert who actively fights against these myths. In the process, she helps people learn how to reduce their risk for developing Alzheimer’s disease. Dr. Braun has worked for 10 years as a clinical neuropsychologist in departments of Neurology, Neurosurgery, and Psychiatry in hospitals and academia. In 2008, she received the Practitioner of the Year Award from the Alzheimer’s Association in southeastern Wisconsin.   #ENDALZ  #ABAM @healthcentral

Read full article on HealthCentral about how a memory expert views the preservation of brain health:

Purchase Minding Our Elders: Caregivers Share Their Personal Stories – paperback or ebook

Minding Our Elders lets you know that you are not alone, that you are not going to be perfect, but you can get the job done, You do the best you can, and that is good enough. We can't be Carol, but we can learn from her going before us. What a friend to have. What a gift she gave us. – CM Jones


Alzheimer's Authors Sponsor Book Sale This Week Only to Honor "The Longest Day"

AlzAuthorsSae2AlzAuthors was founded in 2016 by four daughters of dementia who met over the internet because of their books and formed a friendship and a mission to create a space where caregivers can find solid support, and those who share their stories can find the proper audience. I'm honored to be a member of AlzAuthors.


You may have heard that June is Alzheimer's and Brain Awareness Month, and June 21st is The Longest Day. Sponsored by the Alzheimer's Association, these important events increase awareness of Alzheimer's, related dementias, and brain health. In recognition of these events, AlzAuthors has put together our very first eBook sale!


Starting June 21 through June 28, you can take advantage of this opportunity to check out some of our books at reduced prices, ranging from 2.99 to free. We offer a variety of genres, from fiction, memoir, and non-fiction. Many of our books are also available in paperback and audio, so check them out too.


Our books are written from a deep place of understanding, experience, knowledge, and love. May you find one - or two, or three! - to help guide you on your own dementia journey. Browse the AlzAuthors eBook Sale!

#ENDALZ #AlzAuthors #ABAM


Downsizing Not Always Right Attitude As Boomers Move Forward

Moving2Downsizing refers to exchanging large homes for smaller digs, and there are plenty of companies around to help aging boomers make this transition. Yet, there are nuances to making the right changes at the right time in anyone’s life. These nuances are the reason why I became interested in a company called Caring Transitions. They offer help in what they call right-sizing.

I asked Chris Seman, president of the company, about what they do and why they are different from a company that comes in to aid people with downsizing. I found Chris’ information helpful, and I hope that you do, too.

Read full article on HealthCentral about how to determine what kind of changes you need - downsizing or rightsizing?

Purchase Minding Our Elders: Caregivers Share Their Personal Stories – paperback or ebook

Minding Our Elders lets you know that you are not alone, that you are not going to be perfect, but you can get the job done, You do the best you can, and that is good enough. We can't be Carol, but we can learn from her going before us. What a friend to have. What a gift she gave us. – CM Jones

 


Caffeine May Lower Risk for Cognitive Decline

Coffee1Throughout the last several decades, caffeine has been alternately touted as hero or villain. For a time, caffeine was blamed for birth defects in children, and healthy eating, in general, meant eliminating food or beverages containing caffeine. Still, one of the most explosive new trends Throughout the last several decades, caffeine has been alternately touted as hero or villain. For a time, caffeine was blamed for birth defects in children, and healthy eating, in general, meant eliminating food or beverages containing caffeine. Still, one of the most explosive new trends we’ve seen over the last dozen years has been designer coffee shops and kiosks, which show that people will not always follow where health gurus lead. Now the coffee drinkers may be vindicated.we’ve seen over the last dozen years has been designer coffee shops and kiosks, which show that people will not always follow where health gurus lead. Now the coffee drinkers may be vindicated. Past studies about a relationship between caffeine and dementia have used animal models or have been conducted using either subjective information or small numbers of people. When it comes to caffeine and Alzheimer’s, solid information has been scarce.

Read more on HealthCentral about how caffeine can improve your health:

Support a caregiver or jump start discussion in support groups with real stories - for bulk orders of Minding Our Elders e-mail Carol


Give Your Dad the Best Father’s Day Gift Ever: Your Attention

FatherDaughter...As years go by, most of us gain–or attempt to gain–perspective. By retelling personal stories, elders are often, consciously or subconsciously, trying to reframe their life from the perspective of time. If we give them the gift of attentive listening, we may find their stories more interesting and even learn something new about them. Since an elder’s history is part of our own, we might learn something new about ourselves, too. This mutually beneficial activity is the perfect gift for Dads this Father’s Day.

Read the full article on Agingcare about how much your attention can mean to both of you on Father's Day:

Purchase Minding Our Elders: Caregivers Share Their Personal Stories – paperback or ebook

“I hold onto your book as a life preserver and am reading it slowly on purpose...I don't want it to end.”  Craig William Dayton, Film Composer


Cruel Remarks Follow Plan to Move Husband Into a Nursing Home

Comfort14Dear Carol: My dad had a massive stroke five years ago when he was 78, and Mom, who’s the same age, is caring for him at home. Mom's finally realizing that she can’t keep this up because her health is declining. I live 500 miles away so I can only help so much. Mom’s tried hiring in-home care but that hasn’t worked out consistently so Dad’s on a list for a nearby nursing home. Having to make this move is heartbreaking for Mom but she knows that it needs to be done. The problem is Dad’s sister, who is also Mom’s friend. She’s been laying guilt on Mom saying that Mom’s not honoring her marriage vows if she moves Dad. This woman has been a widow for 30 years and her husband died suddenly of a heart attack. She has no idea about what Mom’s been through. Mom’s moving ahead with the plan, but my aunt’s bitter words are painful for her. Mom reads your column. Could you give us both some support? TM

Read full article on Inforum about the cruelty of being judged for placing a loved one in a nursing home:

Support a caregiver or jump start discussion in support groups with real stories - for bulk orders of Minding Our Elders e-mail Carol


Celebrating Father's Day When Your Dad Has Dementia

MomandDadFather’s Day and my birthday always fall close together. Some years they are the same day. That always made Father’s Day an extra special time in our house as I was growing up. I was, of course, an adult and mother by the time Dad had the surgery that threw him into dementia for the following decade. However, my adulthood didn’t shield me from the pain of missing “my real dad” when I’d bring Mom up to the nursing home and we brought cards and flowers.

Read full article on HealthCentral about celebrating Father's Day when your dad has dementia:

Purchase Minding Our Elders: Caregivers Share Their Personal Stories – paperback or ebook

“I hold onto your book as a life preserver and am reading it slowly on purpose...I don't want it to end.”  Craig William Dayton, Film Composer


6 Ways to Stop Stressing about Potential Disease

Brain4Many people are genetically predisposed to developing certain diseases, among them diabetes, cancer, heart disease and Alzheimer’s. It’s natural to worry if you’ve watched family members endure the illnesses. However, the cortisol released in your body by chronic stress, which can be caused by worry, could increase your susceptibility. The fix? Be proactive. Limiting stress may not completely protect you from the disease that you dread, but it can help your overall health and, for some diseases, this could help you avoid a trigger. Where do you start?

View slide show on HealthCentral about how to stop stressing about potential disease:

Purchase Minding Our Elders: Caregivers Share Their Personal Stories – paperback or ebook

The stories in this fine book showed us how others have gone through similar things with their families and that is somehow reassuring. There are some helpful suggestions but mostly there is the recognition that others went through the same thing. All we can do is our best. That is greatly reassuring during these difficult emotional times. If you are a caregiver, this is a must read. - Delores Edwards